MOTHER

In 2012 My mother was diagnosed with early onset Alzheimer’s Disease, an early form of the same disease her own mother suffered from. Signs of the disease existed before she was officially diagnosed but it would go unchecked and was seen as nothing more than mild quirks that she had always carried with her. She began to show mild signs

in her mid-50s, and over the years, I began to document her journey through this challenging disease. Now in her late 70s and bed-ridden, my siblings and I have made the choice to care for her in our home. This decision stems from a deep commitment to ensure she receives love and the best possible care during this difficult time.

Alzheimer's is indeed a brutal disease, stripping away the essence of who she once was. Even though she is physically present, I find myself missing her every day. I miss our cherished moments baking cookies and upside down cakes in the kitchen, enjoying our favorite TV shows together through the years, and sharing those sweet, heartwarming talks that defined our relationship.

My mother never wanted to face this fate; she witnessed her own parents succumb to the ravages of Alzheimer's. It was a heavy burden for her, and she often expressed her wishes to us, asking that we never place her in a facility. Keeping that promise to her has been a source of both comfort and responsibility for us as her children. We want her to feel safe and loved within the familiar walls of our home, surrounded by those who know her best.

Our days now require patience and resilience. Although the illness has changed her, the love we share remains. Every caregiver moment is infused with the memories of who she was, and those memories remind us why we chose this path. Even amid the sorrow of her condition, we are dedicated to ensuring her dignity and comfort, holding onto the essence of our bond in whatever ways we can.

October 2016.


As the soft notes of familiar music was heard through her headset, memories unfolded like petals of a blooming flower, revealing vivid snapshots of her husband, a talented saxophonist.

These moments were precious; they were untouched by the creeping shadows of Alzheimer’s. This part of her brain, still vibrant and keen, held onto the music that had woven itself into the fabric of their lives. The songs spoke of late-night jam sessions and spontaneous dances.

Yet, with each cherished note, the bittersweet truth unfurled. The realization that he was gone anchored itself deep in her heart. The music, while a bridge to the past, also served as a reminder of the silence that had since settled into her life. Loss draped over her like a shroud, heavy and persistent.

But for that fleeting moment, with the melody wrapping around her, she felt the essence of him. As if the notes themselves were echoing his spirit, a promise that love, once shared through the music, would always linger somewhere within her, even as time pushed forward and memory became fleeting.

Her words come out in pieces, like scattered autumn leaves. She sometimes leaves out subjects or mixes up verbs. "Remember when you where a baby..." she starts, letting the thought fade, yet her memories come to life in my mind. Her eyes brighten, and we share understanding without words. I sense her rhythm, pauses, and the laughter hidden in her unfinished thoughts. Each piece holds a memory, eager to be remembered. Her expression shows everything; her happiness speaks volumes. Even as Alzheimer's affects her speech, her essence remains strong. I listen closely, grasping the unspoken, knowing love transcends words. What seems like jumbled talk gives me a precious view into her heart and soul.

Remembering her husband I.

Remembering her husband III.

Remembering her husband II.

She Remembered her mom’s name.

Forgets her son’s name.